After years of being involved with parent carer forums, I have made the decision to move on to a new challenge. This decision has been hugely daunting, as despite any frustrations the role may have brought to me (as any role will occasionally do), it was also a role I knew well. I was comfortable….
As any Mum will know (and this counts if you call yourself Mum, Mom, Mummy, Mother or any other variation), you are just not allowed to be ill. The thought of lying in bed with a thermometer (and Netflix, a cuppa and perhaps a good book) is a little secret dream we have. Why can’t…
Some of you may have noticed a new photo appearing in my side bar. I am Daring Greatly. What does this actually mean? About a month ago, I was recommended a book by Brene Brown – The Gifts of Imperfection. I couldn’t download it on my kindle here in the UK but I could download it via…
I have been approached by a magazine and asked for my views on the following: How should SENCOs involve parents in the decision making process and plan for their child? What can SENCOs do to improve co-production and communication in general? What types of questions do you think parents will be asking of SENCOs over…
As a parent of three children with a variety of SEN and Disability, I often said “I just wish they would show me some respect”. One day I was challenged to define what I meant by Respect, so I went to several parents like me and asked. This is what they said What else…
The last few weeks have been full of harsh reality checks; those moments when reality just slaps you hard across the face. They hurt. One of the big ones was the sudden unexpected reappearance of my gorgeous boy’s coping mechanism for anxiety. This is something we haven’t seen for almost two years – we are…
Do you use Pinterest? Now I love Pinterest and use it regularly (ok, daily) to be inspired. It has helped me immensely when trying to get ideas on how to get organised. Other work from home mums have shared so many tips and advice. Do you pin to a board all about getting organised? Working…
These past three weeks have been very strange for me, I have actually had to stay home. My children have had a full round of sickness bugs and then just one day after returning to school, we then received a full quota of chickenpox. So I have had to give apologies to all meetings and…
Well, my mission to get organised continues. I have spent a lot of time reading blogs and tips. I have also spent many hours on my beloved Pinterest. I purchased a lovely A5 filfoax as phone apps were not doing it for me. I had discovered Astrid which I thought may be the solution but…
I’m on cloud 9 this evening. In January I agreed to become a collaborator on a very successful blog. Today, the creator of the blog has given me my first Linkedin recommendation. It reads as follows: I asked Debs to join me at Special Needs Jungle at the beginning of 2013. I believed she would…
As you all know by now, I am on a mission to get organised. If like me, you find it hard to say no when someone says “oh could you just…” or “wouldn’t it be great if we had someone who could ……..”, you will have lots of ideas floating around in your head or…
How did I live without Pinterest? I spent 10 mins (or was it hours) yesterday looking at “organising paperwork/receipts” and I found some great ideas. I have to say though that I was amazed at the level some people go to – definite A types. However, one of my big issues is receipts! I co-run…
Why did I think driving 300 miles on a Bank Holiday would be a good idea? Why did I think Bank Holidays and Motorways would ever be a good combination? My day started badly when I was setting up the kids DVD players in the car and managed to lock myself into the back seat….
So often we write down our complaints, our bad experiences; we write about the people who made us unhappy today or the comment that you read that you felt was aimed directly at you. Today, however, I want to write about the things and people I am thankful for. The good people often get taken…
We use these words regularly in our lives but what is the difference? As a parent we have responsibility to enable our child to Be healthy Stay safe Enjoy and achieve Make a positive contribution Achieve economic well-being Responsibility is bestowed on us when we take on the role of parent or carer, whether we like…
Do you remember? Do you remember the day you heard? Do you remember the day your child was given a label? Do you remember the day your life was turned upside down? Do you remember thinking your heart would never feel this much pain again? Do you remember thinking you would never cope with this? …
Many years ago, before I really knew what I was doing with videos, I put together a compilation of the everyday things families of children with disabilities go through. The everyday things which may be in one set of case notes but not another, or more likely not in any notes, the everyday things parents…
Many years ago, a practitioner sat in my home – perfectly groomed – and stated that she understood what my life was like. I knew that she could empathise but not understand – not unless she was a mum of a child with special needs too. Today Video: In order to deal with my frustration, I…
I spend so much time with parents and often hear how they would like a magic blue pill to make everything better. Here is a letter to my children about a magic blue pill. I would like to start with saying though that my children do not have health issues which involve many many hours,…
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