We use these words regularly in our lives but what is the difference? As a parent we have responsibility to enable our child to Be healthy Stay safe Enjoy and achieve Make a positive contribution Achieve economic well-being Responsibility is bestowed on us when we take on the role of parent or carer, whether we like…
Do you remember? Do you remember the day you heard? Do you remember the day your child was given a label? Do you remember the day your life was turned upside down? Do you remember thinking your heart would never feel this much pain again? Do you remember thinking you would never cope with this? …
Many years ago, before I really knew what I was doing with videos (and before I was lucky enough to be gifted with an I-Mac), I put together a compilation of the every day things families of children with disabilities go through. The every day things which may be in one set of case notes…
Many years ago, a practitioner sat in my home – perfectly groomed – and stated that she understood what my life was like. I knew that she could empathise but not understand – not unless she was a mum of a child with special needs too. Today Video: In order to deal with my frustration, I…
I spend so much time with parents and often hear how they would like a magic blue pill to make everything better. Here is a letter to my children about a magic blue pill. I would like to start with saying though that my children do not have health issues which involve many many hours,…
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