Today, I lost a friend

Today I lost a friend.  Those five words cannot convey the heartbreak I am feeling. I lost an amazing friend who has been part of my life for over 20 years.  He was the type of friend everyone should have.  My life was certainly richer for knowing him. Who was Jeremy? A friend who didn’t judge. A…

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Why?

Why is it that when you have read everything you can about your children’s known conditions, another one pops up to knock the wind out of your sails? Why is it that your children’s conditions cause such mayhem and turn your life upside down in a way no one can understand unless they’ve been there?…

Stop the world

Today has been one of those days when I wanted to just say “stop the ride, I want to get off”. Yesterday my gorgeous youngest son started to have unexplained black outs, so as we have an amazing GP, we went along last night. We had to return this morning for bloods. Now, Emla cream,…